Learn from lessons past to safely unlock the power of health data

Health Data Research UK directors advocate for privacy-enhancing technology in data sharing, focusing on transparency, public engagement and good governance. They urge action based on past lessons where personal records were lost, maintaining that data must be used in ways that earn public trust, like in safe havens. They point to the Office for National Statistics’ “Five Safes” framework and Ben Goldacre’s government review endorsing federation of Trusted Research Environments as solid standards for health data access.